Working to advance the pace of clinical and translational research in the dystonias to find better treatments.
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.
Find a StudyDystonia Over Time: What We’re Learning from a Natural History Study
To learn more about dystonia, the Dystonia Coalition (DC) is conducting a natural history study, “Dystonia Coalition Projects-3 (DCP3): Natural History; Objective Measures; Biobank; Patient-Centered Outcomes.”
2024 Dystonia Coalition Webinar
The Dystonia Coalition (DC) held a webinar in March of 2024 to provide updates on current projects and launch discussion on future plans.
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Rare Research Report: March 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.