Working to advance
therapeutic development for
amyotrophic lateral sclerosis
and related disorders.
![A patient and a doctor connecting.](https://cdn.statically.io/img/rdcrn.org/sites/default/files/styles/large/public/2023-06/home-page-create-shutterstock_317585720_0.jpg?itok=K3HX0kqb)
Join Our Research Studies
Discover opportunities to participate in research and help further innovations in care for patients like you.
Find a StudyRare Research Report: March 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)
Join the RDCRN for Rare Disease Day at NIH on February 29, 2024
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Thursday, February 29, 2024, from 9 am to 5 pm EST.
![Rare Disease Day at NIH. February 29, 2024. #RDDNIH.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-02/GF1VM4EXMAAreyb.jpeg)