Advancing the health of children with life-threatening viral infections acquired before or during delivery.
![A child sits with a pregnant person. They both hold their hands to the pregnant person's stomach.](https://cdn.statically.io/img/rdcrn.org/sites/default/files/styles/large/public/2022-04/CPIC_Home_research_shutterstock_1980267608.jpg?itok=wi5vjiQZ)
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis and improve the lives of those affected by rare diseases.
Find a StudyNational Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)
Join the RDCRN for Rare Disease Day at NIH on February 29, 2024
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Thursday, February 29, 2024, from 9 am to 5 pm EST.
![Rare Disease Day at NIH. February 29, 2024. #RDDNIH.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-02/GF1VM4EXMAAreyb.jpeg)
Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
![Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.](https://cdn.statically.io/img/www.rarediseasesnetwork.org/sites/default/files/2024-01/RDCRN_TAIRD_Jan2024.jpg)
![Newsletter Image](https://cdn.statically.io/img/rdcrn.org/sites/default/files/2024-07/eBrief-july-2024-cover.jpg)