EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"

EMPOWER CHANGE Your Voice Matters in Securing a Permanent Rare Disease Advisory Council New York State established a temporary Rare Disease Working Group in 2019. Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to make a permanent and robust New York State Rare Disease Advisory Council (RDAC). Meet …

Continue reading "New York State Rare Disease Advisory Council Coalition Meeting"