Management of Sudden Unexpected Infant Deaths in the Emergency Department:: A Family-Centered Care Protocol
- PMID: 35692998
- PMCID: PMC9162392
- DOI: 10.32481/djph.2022.05.003
Management of Sudden Unexpected Infant Deaths in the Emergency Department:: A Family-Centered Care Protocol
Abstract
Objective: To establish a standardized, trauma informed and family-centered emergency department (ED) sudden and unexpected infant death (SUID) management protocol at Nemours Children's Health, Delaware for medical professionals and multidisciplinary team (MDT) collaborators, informed by national clinical practice guidance, and respective of both family and investigative needs. SUID are emotionally distressing for involved family members, often precipitated by profound grief and confusion as the family interacts with many mandated public agencies during the course of a medicolegal death investigation. Although SUID necessitates consideration of child abuse and neglect as a contributory factor, and accurate determination of death cause may have critical implications for other family members and public health, prioritizing family needs in a trauma informed manner is paramount. Collaboration between MDT partners to provide optimal care to families following SUID involves transparent family communication, attending to medical and mental health needs of surviving family (especially siblings), and respecting medicolegal investigative constraints. Many institutions lack standardized approaches to SUID cases, which may precipitate increased family distress and delay initiation of necessary medicolegal death procedures.
Methods: An MDT expert panel consisting of medical, legal, law enforcement, and child welfare professionals was convened at Nemours Children's Health, Delaware in 2018 over a 3-month period to analyze and implement an enhanced, family-centered, trauma informed hospital protocol.
Results: Using exploratory inquiry and dialogue to elicit important protocol goals, a family-centered protocol with revised, coordinated roles for MDT members was developed with enhanced focus on communication, family-, and team-oriented care.
Conclusions: Implementation of a family-centered, ED-based protocol standardizing the approach to SUID effectively supports medicolegal death investigative procedures while prioritizing trauma informed, supportive, sensitive ED care for grieving families.
Policy implications: Health care institutions serving children and their families should develop and implement trauma informed, family-centered protocols to ensure sensitivity during medicolegal death investigations.
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References
-
- Palusci, V. J., Devinksy, O., Drake, S. A., Kay, A. J., Landi, K., Bowen, E., & Crandall, L. G. (2019). Family needs and follow up care after the sudden, unexpected death of a child. In: Bundock, E., & Corey, T. (eds.): Unexplained pediatric deaths: investigation, certification and family needs. The SUDC Foundation: Roseland, NJ, USA.
-
- Garstang, J., Watson, D., Pease, A., Ellis, C., Blair, P. S., & Fleming, P. (2021, September). Improving engagement with services to prevent Sudden Unexpected Death in Infancy (SUDI) in families with children at risk of significant harm: A systematic review of evidence. Child: Care, Health and Development, 47(5), 713–731. 10.1111/cch.12875 - DOI - PubMed
-
- Palusci, V. J., Kay, A. J., Batra, E., Moon, R. Y., Corey, T. S., Andrew, T., & Graham, M., & the Council on Child Abuse and Neglect, & the Section on Child Death Review and Prevention, & the Task Force on Sudden Infant Death Syndrome, & the NATIONAL ASSOCIATION OF MEDICAL EXAMINERS. (2019, September). Identifying child abuse fatalities during infancy. Pediatrics, 144(3), e20192076. 10.1542/peds.2019-2076 - DOI - PubMed
-
- O’Malley, P. J., Barata, I. A., Snow, S. K., Shook, J. E., Ackerman, A. D., Chun, T. H., . . .. Brecher, D., & the American Academy of Pediatrics Committee on Pediatric Emergency Medicine, & the American College of Emergency Physicians Pediatric Emergency Medicine Committee, & the Emergency Nurses Association Pediatric Committee. (2014, July). Death of a child in the emergency department. Pediatrics, 134(1), 198–201. 10.1542/peds.2014-1245 - DOI - PubMed
-
- U.S. Department of Health & Human Services. (2020). Child Maltreatment, 2020, •••. Retrieved from https://www.acf.hhs.gov/cb/report/child-maltreatment-2020
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