Does a Pandemic Preempt Participatory Medicine?
- PMID: 33157521
- PMCID: PMC7744137
- DOI: 10.2196/23860
Does a Pandemic Preempt Participatory Medicine?
Abstract
For those of us who believe deeply in a collaborative relationship between patients and doctors, the chaos created by the COVID-19 pandemic has brought an uncomfortable question to the fore: Is participatory medicine still relevant during a pandemic? Drawing liberally upon the Jewish tradition of Talmudic reasoning, I would like to offer 3 considered replies: "Yes," "no," and "it depends." Sometimes, patients may have no choice but to cede control to medical professionals, even though patients are still the experts on their own lives. Other times, the shared control of participatory medicine is both an ethical and clinical imperative. However, as the worldwide toll exacted by COVID-19 has made us grimly aware, no one is really in control. That is why, in these uncertain times, the path forward requires maintaining mutual trust between health care providers and patients, whatever the circumstances. After all, it is our bodies and our selves at stake.
Keywords: COVID-19; DETECT study, Body Politic; Fitbit; pandemic; participatory medicine; patient-generated health data; sensors; shared decision making; wearables.
©Michael Louis Millenson. Originally published in Journal of Participatory Medicine (http://jopm.jmir.org), 14.12.2020.
Conflict of interest statement
Conflicts of Interest: None declared.
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