. 2020 Oct 21;102(20):1836-1838.

doi: 10.2106/JBJS.19.00625.

What's Important: Patient Engagement in Research

Diamond Hale¹, Debra Marvel¹, Jeffrey Wells^{1

2}; PREP-IT Investigators

Collaborators, Affiliations

Collaborators

PREP-IT Investigators:
Gerard P Slobogean, Sheila Sprague, Jeffrey Wells, Mohit Bhandari, Jean-Claude D’Alleyrand, Anthony D Harris, Daniel C Mullins, Lehana Thabane, Amber Wood, Gregory J Della Rocca, Joan Hebden, Kyle J Jeray, Lyndsay M O’Hara, Michael J Gardner, Jenna Blasman, Jonah Davies, Stephen Liang, Monica Taljaard, P J Devereaux, Gordon H Guyatt, Debra Marvel, Jana Palmer, Jeff Friedrich, Nathan N O’Hara, Frances Grissom, I Leah Gitajn, Saam Morshed, Robert V O’Toole, Bradley A Petrisor, Megan Camara, Franca Mossuto, Manjari G Joshi, Justin Fowler, Jessica Rivera, Max Talbot, Paula Max, Diane Heels-Ansdell, Shannon Dodds, Alisha Garibaldi, Uyen Nguyen, David Pogorzelski, Taryn Scott, Andrea Howe, Joshua Rudnicki, Haley Demyanovich, Kelly Little, Michelle Medeiros, Eric Kettering, Diamond Hale, Andrew Eglseder, Aaron Johnson, Christopher Langhammer, Christopher LeBrun, Theodore Manson, Jason Nascone, Ebrahim Paryavi, Raymond Pensy, Andrew Pollak, Marcus Sciadini, Yasmin Degani, Katherine Ordonio, Joshua Gary, Milton Routt Jr., John Munz, Stephen Warner, Andrew Choo, Timothy Achor, Adam Miller, Bill Ristevski, Dale Williams, Matthew Denkers, Krishan Rajaratnam, Jamal Al-Asiri, Herman Johal, Jordan Leonard, Francesc A Marcano-Fernández, Jodi Gallant, Roman M Natoli, Greg E Gaski, Todd O McKinley, Walter W Virkus, Anthony T Sorkin, Jan P Szatkowski, Joseph R Baele, Lauren C Hill, Anna M Fenoglio, Clifford B Jones, Michael McKee, J Tracy Watson, Niloofar Dehghan, Debra L Sietsema, Tayler Dykes, Jennifer E Hagen, Matthew Patrick, Kalia Sadasivan, Chris Koenig, Daniel Bailey, Daniel Wentworth, Patrick Osborn, Michael Beltran, Eric Martinez, Amado Gonzalez, Joseph Kimmel, John D Adams, Michael Beckish, Christopher C Bray, Timothy Brown, Andrew Cross, Timothy Dew, Gregory Faucher, Richard W Gurich Jr., David Lazarus, S John Millon, Jason Palmer, Scott Porter, Thomas Schaller, Michael Sridhar, John Sanders, L Edwin Rudisill Jr., Stephanie L Tanner, Rebecca Snider, Christine Townsend, Kayla Pham, Utku Kandemir, Meir Marmor, Amir Matityahu, R Trigg McClellan, Eric Meinberg, Theodore Miclau, David Shearer, Paul Toogood, Anthony Ding, Tigist Belaye, Eleni Berhaneselase, Alexandra Paul, Michael Prayson, Indresh Venkatarayappa, Brandon Horne, Jennifer Jerele, Linda Clark, Nathan Myers, Mara Schenker, William Reisman, Clifton Meals, Thomas Moore, Michael Maceroli, Brent Wise, Diane Payne, Christopher Sadlack, Erika Ortega, Christina Boulton, Jason Lowe, Jason Wild, John T Ruth, Michael Taylor, Andrea Seach, David Bradford, Joshua Black, Sara Herman, Sabina Saeed, Maria Love, Hunter Culbert, William T Obremskey, Amir Alex Jahangir, Manish Sethi, Robert Boyce, Karen Trochez, Andres Rodriquez, Vamshi Gajari, Olivia Knoll, Robert A Hymes, Cary C Schwartzbach, Jeff E Schulman, A Stephen Malekzadeh, Michael A Holzman, Lolita Ramsey, James S Ahn, Farhanaz Panjshiri, Sharon M Haaser, Jaslynn A N Cuff, Nicholas M Romeo, Heather Vallier, Harry Hoyen, Blaine T Bafus, Jonathan L Belding, Ari Levine, Adam Hirschfeld, Glenn Wera, Roger G Wilbur, Adrienne Lee, Nicholas A Alfonso, Mary Breslin, Eleanor Wilson, Leanne Wadenpfuhl, Patrick F Bergin, George V Russell, Matthew L Graves, John Morellato, Heather K Champion, Leslie N Johnson, Holly Pilson, Eben A Carroll, Jason J Halvorson, Sharon Babcock, J Brett Goodman, Martha B Holden, Debra Bullard, Wendy Williams, Kevin Phelps, Michael Bosse, Madhav Karunakar, Laurence Kempton, Stephen Sims, Joseph Hsu, Rachel Seymour, Christine Churchill, Catherine Henderson, Kristina Neri, Meron Fessehaye, Matthew Morris, Ada Mayfield, Samir Mehta, Derek Donegan, Jaimo Ahn, Annamarie Horan, Aron Schwartz, Kelly Clark, Mary Dooley, Michael J Weaver, Arvind von Keudell, Michael F McTague, Elizabeth M Allen, Marilyn Heng, Mitchel B Harris, R Malcolm Smith, David W Lhowe, John G Esposito, Mira Bansal, Thomas F Higgins, Justin M Haller, David L Rothberg, Ashley Neese, Darius G Viskontas, Kelly L Apostle, Dory S Boyer, Farhad O Moola, Bertrand H Perey, Trevor B Stone, H Michael Lemke, Mauri Zomar, Brenda Fan, Kyrsten Payne, Mark J Gage, Rachel M Reilly, Kendra L Marr, Holly Symonds, Cliff Reilly, Devin Mullins, Todd Jaeblon, Robert Beer

Affiliations

¹ The PATIENTS Program, Department of Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, Baltimore, Maryland.
² Patient Trauma Survivors Network, Falls Church, Virginia.

PMID: 33086354
DOI: 10.2106/JBJS.19.00625

What's Important: Patient Engagement in Research

Diamond Hale et al. J Bone Joint Surg Am. 2020.

. 2020 Oct 21;102(20):1836-1838.

doi: 10.2106/JBJS.19.00625.

Authors

Diamond Hale¹, Debra Marvel¹, Jeffrey Wells^{1

2}; PREP-IT Investigators

Collaborators

PREP-IT Investigators:
Gerard P Slobogean, Sheila Sprague, Jeffrey Wells, Mohit Bhandari, Jean-Claude D’Alleyrand, Anthony D Harris, Daniel C Mullins, Lehana Thabane, Amber Wood, Gregory J Della Rocca, Joan Hebden, Kyle J Jeray, Lyndsay M O’Hara, Michael J Gardner, Jenna Blasman, Jonah Davies, Stephen Liang, Monica Taljaard, P J Devereaux, Gordon H Guyatt, Debra Marvel, Jana Palmer, Jeff Friedrich, Nathan N O’Hara, Frances Grissom, I Leah Gitajn, Saam Morshed, Robert V O’Toole, Bradley A Petrisor, Megan Camara, Franca Mossuto, Manjari G Joshi, Justin Fowler, Jessica Rivera, Max Talbot, Paula Max, Diane Heels-Ansdell, Shannon Dodds, Alisha Garibaldi, Uyen Nguyen, David Pogorzelski, Taryn Scott, Andrea Howe, Joshua Rudnicki, Haley Demyanovich, Kelly Little, Michelle Medeiros, Eric Kettering, Diamond Hale, Andrew Eglseder, Aaron Johnson, Christopher Langhammer, Christopher LeBrun, Theodore Manson, Jason Nascone, Ebrahim Paryavi, Raymond Pensy, Andrew Pollak, Marcus Sciadini, Yasmin Degani, Katherine Ordonio, Joshua Gary, Milton Routt Jr., John Munz, Stephen Warner, Andrew Choo, Timothy Achor, Adam Miller, Bill Ristevski, Dale Williams, Matthew Denkers, Krishan Rajaratnam, Jamal Al-Asiri, Herman Johal, Jordan Leonard, Francesc A Marcano-Fernández, Jodi Gallant, Roman M Natoli, Greg E Gaski, Todd O McKinley, Walter W Virkus, Anthony T Sorkin, Jan P Szatkowski, Joseph R Baele, Lauren C Hill, Anna M Fenoglio, Clifford B Jones, Michael McKee, J Tracy Watson, Niloofar Dehghan, Debra L Sietsema, Tayler Dykes, Jennifer E Hagen, Matthew Patrick, Kalia Sadasivan, Chris Koenig, Daniel Bailey, Daniel Wentworth, Patrick Osborn, Michael Beltran, Eric Martinez, Amado Gonzalez, Joseph Kimmel, John D Adams, Michael Beckish, Christopher C Bray, Timothy Brown, Andrew Cross, Timothy Dew, Gregory Faucher, Richard W Gurich Jr., David Lazarus, S John Millon, Jason Palmer, Scott Porter, Thomas Schaller, Michael Sridhar, John Sanders, L Edwin Rudisill Jr., Stephanie L Tanner, Rebecca Snider, Christine Townsend, Kayla Pham, Utku Kandemir, Meir Marmor, Amir Matityahu, R Trigg McClellan, Eric Meinberg, Theodore Miclau, David Shearer, Paul Toogood, Anthony Ding, Tigist Belaye, Eleni Berhaneselase, Alexandra Paul, Michael Prayson, Indresh Venkatarayappa, Brandon Horne, Jennifer Jerele, Linda Clark, Nathan Myers, Mara Schenker, William Reisman, Clifton Meals, Thomas Moore, Michael Maceroli, Brent Wise, Diane Payne, Christopher Sadlack, Erika Ortega, Christina Boulton, Jason Lowe, Jason Wild, John T Ruth, Michael Taylor, Andrea Seach, David Bradford, Joshua Black, Sara Herman, Sabina Saeed, Maria Love, Hunter Culbert, William T Obremskey, Amir Alex Jahangir, Manish Sethi, Robert Boyce, Karen Trochez, Andres Rodriquez, Vamshi Gajari, Olivia Knoll, Robert A Hymes, Cary C Schwartzbach, Jeff E Schulman, A Stephen Malekzadeh, Michael A Holzman, Lolita Ramsey, James S Ahn, Farhanaz Panjshiri, Sharon M Haaser, Jaslynn A N Cuff, Nicholas M Romeo, Heather Vallier, Harry Hoyen, Blaine T Bafus, Jonathan L Belding, Ari Levine, Adam Hirschfeld, Glenn Wera, Roger G Wilbur, Adrienne Lee, Nicholas A Alfonso, Mary Breslin, Eleanor Wilson, Leanne Wadenpfuhl, Patrick F Bergin, George V Russell, Matthew L Graves, John Morellato, Heather K Champion, Leslie N Johnson, Holly Pilson, Eben A Carroll, Jason J Halvorson, Sharon Babcock, J Brett Goodman, Martha B Holden, Debra Bullard, Wendy Williams, Kevin Phelps, Michael Bosse, Madhav Karunakar, Laurence Kempton, Stephen Sims, Joseph Hsu, Rachel Seymour, Christine Churchill, Catherine Henderson, Kristina Neri, Meron Fessehaye, Matthew Morris, Ada Mayfield, Samir Mehta, Derek Donegan, Jaimo Ahn, Annamarie Horan, Aron Schwartz, Kelly Clark, Mary Dooley, Michael J Weaver, Arvind von Keudell, Michael F McTague, Elizabeth M Allen, Marilyn Heng, Mitchel B Harris, R Malcolm Smith, David W Lhowe, John G Esposito, Mira Bansal, Thomas F Higgins, Justin M Haller, David L Rothberg, Ashley Neese, Darius G Viskontas, Kelly L Apostle, Dory S Boyer, Farhad O Moola, Bertrand H Perey, Trevor B Stone, H Michael Lemke, Mauri Zomar, Brenda Fan, Kyrsten Payne, Mark J Gage, Rachel M Reilly, Kendra L Marr, Holly Symonds, Cliff Reilly, Devin Mullins, Todd Jaeblon, Robert Beer

Affiliations

¹ The PATIENTS Program, Department of Pharmaceutical Health Services Research, School of Pharmacy, University of Maryland, Baltimore, Maryland.
² Patient Trauma Survivors Network, Falls Church, Virginia.

PMID: 33086354
DOI: 10.2106/JBJS.19.00625

No abstract available

PubMed Disclaimer

Cited by

Impact of Patient Engagement on Healthcare Quality: A Scoping Review.
Marzban S, Najafi M, Agolli A, Ashrafi E. Marzban S, et al. J Patient Exp. 2022 Sep 16;9:23743735221125439. doi: 10.1177/23743735221125439. eCollection 2022. J Patient Exp. 2022. PMID: 36134145 Free PMC article.

References

1. Mullins CD, Abdulhalim AM, Lavallee DC. Continuous patient engagement in comparative effectiveness research. JAMA. 2012 Apr 18;307(15):1587-8.
1. Sofolahan-Oladeinde Y, Newhouse RP, Lavallee DC, Huang JC, Mullins CD. Early assessment of the 10-step patient engagement framework for patient-centred outcomes research studies: the first three steps. Fam Pract. 2017 Jun 1;34(3):272-7.
1. Kauffman KS, Dosreis S, Ross M, Barnet B, Onukwugha E, Mullins CD. Engaging hard-to-reach patients in patient-centered outcomes research. J Comp Eff Res. 2013 May;2(3):313-24.
1. Huang J, Lipman PD, Daniel Mullins C. Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research. Transl Behav Med. 2017 Dec;7(4):773-82.

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