Trust and the Ethical Conduct of Community-Engaged Research
- PMID: 29375883
- PMCID: PMC5785932
- DOI: 10.5750/ejpch.v5i4.1263
Trust and the Ethical Conduct of Community-Engaged Research
Abstract
Community-engaged research (CEnR), which emphasizes equal participation of academic and community partners in research, seeks to improve public trust in science. Unfortunately, there is a dearth of rigorous empirical research on trust as a core component of ethical conduct of CEnR. Drawing on data collected from a project on the ethics of CEnR, this commentary discusses benefits and risks of trust and uses the concept of embeddedness to explain how public trust in science may be increased. We argue that in developing and maintaining trust, partners must balance scientific rigor with community relevance and cultural appropriateness of research. They must strike a balance between working with the same limited pool of trusted partners, which can speed research but slow wider acceptance of science, and extending their trust to new partners, which can broaden acceptance of science but slow research. Practitioners may facilitate the development of trust in science by gradually expanding the pool of partners they choose their collaborators from.
Keywords: Community-Engaged Research; Embeddedness; Research Ethics; Trust.
Similar articles
-
Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative.Eval Health Prof. 2020 Sep;43(3):180-192. doi: 10.1177/0163278718819719. Epub 2019 Jan 6. Eval Health Prof. 2020. PMID: 30612444 Free PMC article.
-
Measuring Community-Engaged Research Contexts, Processes, and Outcomes: A Mapping Review.Milbank Q. 2020 Jun;98(2):493-553. doi: 10.1111/1468-0009.12458. Epub 2020 May 19. Milbank Q. 2020. PMID: 32428339 Free PMC article. Review.
-
On using ethical principles of community-engaged research in translational science.Transl Res. 2016 May;171:52-62.e1. doi: 10.1016/j.trsl.2015.12.008. Epub 2015 Dec 19. Transl Res. 2016. PMID: 26773561 Free PMC article.
-
Community-engaged research in vascular surgery: An approach to decrease amputation disparities and effect population-level change.Semin Vasc Surg. 2023 Mar;36(1):100-113. doi: 10.1053/j.semvascsurg.2022.12.001. Epub 2022 Dec 22. Semin Vasc Surg. 2023. PMID: 36958891 Free PMC article. Review.
-
Convergence Despite Divergence: Views of Academic and Community Stakeholders about the Ethics of Community-Engaged Research.Ethn Dis. 2019 Apr 18;29(2):309-316. doi: 10.18865/ed.29.2.309. eCollection 2019 Spring. Ethn Dis. 2019. PMID: 31057316 Free PMC article.
Cited by
-
Study Navigation and Enrollment in a Community Sample: Does Generational Cohort Matter?J Intergener Relatsh. 2023;21(3):299-320. doi: 10.1080/15350770.2022.2041526. Epub 2022 Feb 21. J Intergener Relatsh. 2023. PMID: 37724159 Free PMC article.
-
Challenges and Lessons Learned in the Development of a Participatory Learning and Action Intervention to Tackle Antibiotic Resistance: Experiences From Northern Vietnam.Front Public Health. 2022 Jul 26;10:822873. doi: 10.3389/fpubh.2022.822873. eCollection 2022. Front Public Health. 2022. PMID: 35958847 Free PMC article.
-
Advancing health equity through integrated biology and population health research: A community-based sample cortisol feasibility and exploratory study.Compr Psychoneuroendocrinol. 2022 May 28;11:100145. doi: 10.1016/j.cpnec.2022.100145. eCollection 2022 Aug. Compr Psychoneuroendocrinol. 2022. PMID: 35757172 Free PMC article.
-
Call to Action for Enhanced Equity and Inclusion in Cannabis Research.Cannabis Cannabinoid Res. 2021 Apr 15;6(2):77-81. doi: 10.1089/can.2020.0149. eCollection 2021 Apr. Cannabis Cannabinoid Res. 2021. PMID: 33907711 Free PMC article.
-
Citizen science to further precision medicine: from vision to implementation.JAMIA Open. 2019 Dec 3;3(1):2-8. doi: 10.1093/jamiaopen/ooz060. eCollection 2020 Apr. JAMIA Open. 2019. PMID: 32607481 Free PMC article.
References
-
- Corbie-Smith G, Thomas SB, St George DMM. Distrust, race, and research. Archives of Internal Medicine. 2002;162(21):2458–2463. doi: 10.1001/archinte.162.21.2458. - PubMed
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources