Ethical community-engaged research: a literature review
- PMID: 24134352
- PMCID: PMC3828990
- DOI: 10.2105/AJPH.2013.301605
Ethical community-engaged research: a literature review
Abstract
Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.
Similar articles
-
Ethical Challenges in Community-Based Participatory Research: A Scoping Review.Qual Health Res. 2018 Jan;28(2):189-199. doi: 10.1177/1049732317690721. Epub 2017 Feb 21. Qual Health Res. 2018. PMID: 29235941 Review.
-
Community-Based Participatory Research and Human-Centered Design Principles to Advance Hearing Health Equity.Ear Hear. 2022 Jul-Aug 01;43(Suppl 1):33S-44S. doi: 10.1097/AUD.0000000000001183. Epub 2020 Jun 13. Ear Hear. 2022. PMID: 35724253 Free PMC article. Review.
-
Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.Am J Community Psychol. 2019 Sep;64(1-2):9-20. doi: 10.1002/ajcp.12360. Epub 2019 Jul 29. Am J Community Psychol. 2019. PMID: 31355974 Free PMC article.
-
From subject to participant: ethics and the evolving role of community in health research.Am J Public Health. 2015 May;105(5):900-8. doi: 10.2105/AJPH.2014.302403. Epub 2015 Mar 19. Am J Public Health. 2015. PMID: 25790380 Free PMC article.
-
The ethics of community-based research with people who use drugs: results of a scoping review.BMC Med Ethics. 2016 Apr 29;17(1):25. doi: 10.1186/s12910-016-0108-2. BMC Med Ethics. 2016. PMID: 27129927 Free PMC article. Review.
Cited by
-
Walk With Me: reducing harm and confronting the toxic drug poisoning crisis in small British Columbia cities through community engaged research.Harm Reduct J. 2024 May 31;21(1):106. doi: 10.1186/s12954-024-01022-w. Harm Reduct J. 2024. PMID: 38822343 Free PMC article.
-
The promise and pitfalls of a strength-based approach to child poverty and neurocognitive development: Implications for policy.Dev Cogn Neurosci. 2024 Apr;66:101375. doi: 10.1016/j.dcn.2024.101375. Epub 2024 Apr 10. Dev Cogn Neurosci. 2024. PMID: 38608359 Free PMC article.
-
The use of race terms in epigenetics research: considerations moving forward.Front Genet. 2024 Jan 31;15:1348855. doi: 10.3389/fgene.2024.1348855. eCollection 2024. Front Genet. 2024. PMID: 38356697 Free PMC article.
-
Preventing post-discharge suicides in psychiatric patients: insights from patients, lay healthcare supporters, and mental health professionals-a qualitative analysis.BMC Public Health. 2024 Jan 2;24(1):64. doi: 10.1186/s12889-023-17475-w. BMC Public Health. 2024. PMID: 38166746 Free PMC article.
-
Socioeconomic Status and Reading Development: Moving from "Deficit" to "Adaptation" in Neurobiological Models of Experience-Dependent Learning.Mind Brain Educ. 2023 Nov;17(4):324-333. doi: 10.1111/mbe.12351. Epub 2023 Mar 15. Mind Brain Educ. 2023. PMID: 38148924 Free PMC article.
References
-
- Resnik DB. What is ethics in research and why is it important? National Institute of Environmental Health Sciences. 2011 Available at: http://www.niehs.nih.gov/research/resources/bioethics/whatis. Accessed August 29, 2013.
-
- Emanuel EJ, Wendler D, Grady C. What makes clinical research ethical? JAMA. 2000;283(20):2701–2711. - PubMed
-
- The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects Research. Washington, DC: US Department of Health, Education, and Welfare; 1979. - PubMed
-
- Glass KC, Kaufert J. Research ethics review and aboriginal community values: can the two be reconciled? J Empir Res Hum Res Ethics. 2007;2(2):25–40. - PubMed
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources