IPOPI - International Patient Organisation for Primary Immunodeficiencies

Join our team as a Medical Affairs Project Manager! Are you a strategic thinker with a passion for advancing healthcare? Do you excel in project management and thrive in a collaborative environment? We are seeking a highly motivated Medical Affairs Project Manager to join our enthusiastic team! 👉 Job Opportunity: https://lnkd.in/dvVka7wz #jobopportunity #work #brussels #medicalaffairs #projectmanager #IPOPI

📢 IPOPI's latest Hard Talks episode is now live on YouTube! 🎉 👉 Watch now: https://lnkd.in/dQc9hUNG Don't forget to like, comment, and subscribe to stay updated with our latest content. #IPOPI #HardTalks #Immunodeficiency #agammaglobulinemia

📣The Joint Clinical Assessment holds the potential to speed up access to medicines across Europe, but its current guidelines on direct and indirect comparisons threaten #PatientAccess. Join us in this Call To Action! Read more: https://lnkd.in/eAjX-yzs #EUHealth #RareDiseases #ATMPs #JCA #TreatmentInnovation #EUHTA

🌍A big thank you to all the NMO delegates who participated in IPOPI's latest NMO Webchat on July 9! We were thrilled to welcome 33 participants from 20 countries worldwide. 🙌 📜 After the welcome remarks from Martine PERGENT, we were honored to hear from our guest, Dr. Anne Barasa from Kenya, who provided valuable insights into the needs of adult PID patients. 🩺💬 #IPOPI #NMO #Webchat #PID #GlobalHealth #ThankYou #InternationalDelegates #online

📢 Matteo, the president of Association IRIS, France, is a patient affected by a Primary Immunodeficiency Disease (PID). His journey and advocacy efforts have been both inspiring and impactful. Despite the challenges posed by his condition, Matteo has consistently demonstrated an unyielding spirit and commitment to raising awareness about PIDs. Enter IPOPI e-news to read more about Matteo's journey: e-news.ipopi.org 🔗 #enews #newsletter #IPOPI #France #PID #challenges #testimony

📢 The World PI Week Outcome Report is out! -From pages 1-26, discover the 2024 activities & main achievements. 📈 -Pages 27-97 feature snapshots & info on how 54 countries supported this year. 🌏 Every week we will highlight a different regional activity!

🩺Dive deep into the world of Advances in the Management and Treatment of X-linked Agammaglobulinemia with us! 📅Mark your calendars for July 11th at 15:00 CEST! 🕒 Join the captivating dialogue with the brilliant minds of Prof Isabelle Meyts and Dr Pamela Lee! 👨⚕️Tailored for healthcare professionals and visionary patient group leaders, this series promises more than just discussions – it's an immersive experience! 🔗 Secure your spot now at https://lnkd.in/dN4UgT49 #IPOPIHardTalks #IPOPI #agammaglobulinemia

IPOPI - International Patient Organisation for Primary Immunodeficiencies was delighted to participate in the 17th Moroccan PID Congress, Juin 2024 whose sub title was PIDs and pneumology. Prof Aziz Bousfiha and his wonderful team welcomed many Moroccan PID biologists and clinicians including delegates from Mali, Ivory Coast, Senegal, Mauritania, Burundi, Uganda, Comores islands, Tunisia and Lybia as well as lecturers from the Emirates, Saudi Arabia, the US and France with a nice lecture from Dr Nizar Mahlaoui on PID and AI. In a nutshell: • Very diverse and interesting content. • Dynamic discussions during a parents and patients meeting, • Strategizing on Hajar's development in a meeting with its governance • Terrific networking time, supported by Morrocan tea and delicious morrocan biscuits, • The pleasure of meeting in the flesh the team from Mali, among them those who participate in the IPOPI PIDetect programme, • Visit of the facilities of lab. Licia • Last but not least: IPOPI was acknowledged for its commitment to the patients. Heartfelt thank you to our Moroccan hosts!

📢 Exciting News! 🌟 IPOPI's latest Hard Talks episode is now live on YouTube! 🎉 Dive deep into the world of Diagnosis and Management of Paediatric Congenital Athymia with expert insights from Prof Andrew Gennery and Dr Keith Sacco. This episode is packed with valuable information for healthcare professionals, patients, and anyone interested in immunology. 👉 Watch now: https://lnkd.in/dhYVcj8p Don't forget to like, comment, and subscribe to stay updated with our latest content. Your support helps us continue to bring you the best in immunological education! #IPOPI #HardTalks #Immunodeficiency #diagnosi

Thank you Agencia Española de Medicamentos y Productos Sanitarios for opening the doors for #IPOPI! Special thanks to Isabel, Irene, Irina, and Laura for your incredible support and collaboration. It was great to learn more about how regulatory agencies work towards ensuring safety, efficacy and quality of #immunoglobulin medicines. #Collaboration #Healthcare #Spain #Europe