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Coping and Psychological Adjustment Among Mothers of Children with ASD: An Accelerated Longitudinal Study

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Abstract

Utilizing a cohort sequential design and multilevel modeling on a sample of 113 mothers, the effects of four coping strategies (engagement, disengagement, distraction, and cognitive reframing) on multiple measures of maternal adjustment were assessed over a 7 years period when children with autism spectrum disorders in the study were approximately 7–14 years old. Findings indicated increased use of disengagement and distraction to be related to increased maternal maladjustment over time, while increased use of cognitive reframing was linked to improved maternal outcomes (findings regarding engagement’s effects on adjustment measures were mixed). In addition, results indicated that use of different coping strategies at times moderated the effects of child behavior on maternal adjustment. Study findings are discussed in light of prior research and study limitations and clinical implications are highlighted.

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References

  • Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, and fragile X syndrome. American Journal of Mental Retardation, 109, 237–254.

    Article  PubMed  Google Scholar 

  • Aldwin, C. (2011). Stress and coping across the lifespan. In S. Folkman (Ed.), The Oxford handbook of stress, health, and coping (pp. 5–34). NY: Oxford University Press.

    Google Scholar 

  • Aldwin, C. M., & Ravenson, T. A. (1987). Does coping help? A reexamination of the relation between coping and mental health. Journal of Personality and Social Psychology, 53, 337–348.

    Article  PubMed  Google Scholar 

  • Algina, J., & Swaminathan, H. (2011). Centering in two-level nested designs. In J. Hox & J. K. Roberts (Eds.), Handbook of advanced multilevel analysis (pp. 285–312). NY: Taylor and Francis.

    Google Scholar 

  • Altiere, M. J., & von Kluge, S. (2009). Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18, 83–92.

    Article  Google Scholar 

  • Aman, M. G., Tasse, M. J., Rojahn, J., & Hammer, D. (1996). The Nisonger CBRF: A child behavior rating form for children with developmental disabilities. Research in Developmental Disabilities, 17, 41–57.

    Article  PubMed  Google Scholar 

  • Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal of Mental Retardation, 107, 433–444.

    Article  PubMed  Google Scholar 

  • Beck, A., Hastings, R. P., Daley, D., & Stevenson, J. (2004). Pro-social behaviour and behaviour problems independently predict maternal stress. Journal of Intellectual and Developmental Disability, 29, 339–349.

    Article  Google Scholar 

  • Benson, P. R. (2006). The impact of symptom severity of depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36, 685–695.

    Article  PubMed  Google Scholar 

  • Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228.

    Article  Google Scholar 

  • Benson, P. R. (2012). Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 42, 2597–2610.

    Article  PubMed  Google Scholar 

  • Benson, P. R. (2013). Family influences on social and play outcomes among children with ASD during middle childhood. Research in Autism Spectrum Disorders, 7, 1129–1141.

    Article  Google Scholar 

  • Benson, P. R., & Karlof, K. L. (2008). Child, parent, and family predictors of latter adjustment in siblings of children with autism. Research in Autism Spectrum Disorders, 2, 583–600.

    Article  Google Scholar 

  • Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood in mothers of children with ASD: A longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362.

    Article  PubMed  Google Scholar 

  • Benson, P. R., Karlof, K. L., & Siperstein, G. N. (2008). Maternal involvement in the education of young children with autism spectrum disorders. Autism, 12, 47–63.

    Article  PubMed  Google Scholar 

  • Bird, C. E. (1997). Gender differences in the social and economic burdens of parenting and psychological distress. Journal of Marriage and the Family, 59, 809–823.

    Article  Google Scholar 

  • Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28, 1–18.

    Article  Google Scholar 

  • Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the brief COPE. International Journal Behavioral Medicine, 4, 92–100.

    Article  Google Scholar 

  • Carver, C. S., Schneider, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267–283.

    Article  PubMed  Google Scholar 

  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291.

    Article  PubMed  Google Scholar 

  • Deater-Deckard, K. D. (2004). Parenting stress. New Haven: Yale University Press.

    Book  Google Scholar 

  • Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. Journal of Intellectual and Developmental Disabilities, 115, 234–249.

    Article  Google Scholar 

  • Ekas, N. V., Whitman, T. I., & Shivers, C. (2009). Religiousity, spirituality, and socioemotional functioning in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 39, 707–719.

    Article  Google Scholar 

  • Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among mothers and fathers of children with mental retardation. American Journal of Mental Retardation, 104, 545–563.

    Article  PubMed  Google Scholar 

  • Fitzgerald, M., Birkbeck, G., & Matthews, P. (2002). Maternal burden in families with children with autistic spectrum disorder. Irish Journal of Psychology, 23, 2–17.

    Google Scholar 

  • Folkman, S. (1984). Personal control and stress and coping processes: A theoretical analysis. Journal of Personality and Social Psychology, 46, 839.

    Article  PubMed  Google Scholar 

  • Folkman, S., Lazarus, R. S., Gruen, R. J., & DeLongis, A. (1986). Appraisal, coping, health status, and psychological symptoms. Journal of Personality and Social Psychology, 50, 571–579.

    Article  PubMed  Google Scholar 

  • Folkman, S., & Moskowitz, J. T. (2004). Coping: Pitfalls and promise. Annual Review of Psychology, 55, 745–774.

    Article  PubMed  Google Scholar 

  • Gilmore, L., & Cuskelly, M. (2012). Parenting satisfaction and self-efficacy: A longitudinal study of mothers of children with Down syndrome. Journal of Family Studies, 18, 28–35.

    Article  Google Scholar 

  • Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.

    Article  Google Scholar 

  • Hastings, R. P., & Beck, A. (2004). Practitioner review: Stress intervention for parents of children with intellectual disabilities. Journal of Child Psychology and Psychiatry, 45, 1338–1349.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation, 107, 222–232.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Degli Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391.

    Article  PubMed  Google Scholar 

  • Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W., Sayer, A., Upshur, C., et al. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66, 1–126.

    Article  Google Scholar 

  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.

    Article  PubMed  Google Scholar 

  • Hox, J. J. (2010). Multilevel analysis: Techniques and applications (2nd ed.). NY: Routledge.

    Google Scholar 

  • Hudson, A., & Gavidia-Payne, S. (2002). Behavioural supports for parents of children with an intellectual disability and problem behaviours: An overview of the literature. Journal of Intellectual and Developmental Disability, 27, 31–55.

    Article  Google Scholar 

  • Jones, T. L., & Prinz, R. J. (2005). Potential roles of parental self-efficacy in parent and child adjustment: A review. Clinical Psychology Review, 25, 341–363.

    Article  PubMed  Google Scholar 

  • Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism and Developmental Disorders, 43, 2090–2099.

    Article  PubMed  Google Scholar 

  • Kim, H. W., Greenberg, J. S., Seltzer, M. M., & Krauss, M. W. (2003). The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness. Journal of Intellectual Disability Research, 47, 313–327.

    Article  PubMed  Google Scholar 

  • Koren, P. E., DeChillo, N., & Friesen, B. J. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology, 37, 305.

    Article  Google Scholar 

  • Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76, 564–575.

    Article  PubMed  Google Scholar 

  • Lazarus, R. S. (1996). The role of coping in the emotions and how coping changes over the life course. In C. Maletesta-Magni & S. H. McFadden (Eds.), Handbook of emotion and adult development and aging (pp. 289–306). NY: Academic Press.

    Chapter  Google Scholar 

  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. NY: Springer.

    Google Scholar 

  • Lecavlier, L., Aman, M. G., Hammer, D., Stoica, W., & Matthews, G. L. (2004). Factor analysis of the Nisonger Child Behavior Rating Form in children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 34, 709–721.

    Article  Google Scholar 

  • Lecavlier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.

    Article  Google Scholar 

  • Lloyd, T., & Hastings, R. P. (2008). Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: Cross-sectional and longitudinal relationships. Journal of Intellectual Disability Research, 52, 37–48.

    PubMed  Google Scholar 

  • Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685.

    Article  PubMed  Google Scholar 

  • Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417.

    Article  PubMed  Google Scholar 

  • Lyons, A. M., Leon, S. C., Phelps, C. E. R., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with asd: The moderating role of coping styles. Journal of Child and Family Studies, 19, 516–524.

    Article  Google Scholar 

  • Magaña, S., & Smith, M. J. (2006). Psychological distress and well-being of Latina and non-Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards coresidence status. American Journal of Orthopsychiatry, 76, 346–357.

    Article  PubMed  Google Scholar 

  • Mirowsky, J., & Ross, C. E. (2003). Social causes of psychological distress. Hawthrone, NY: Aldine De Gruyter.

    Google Scholar 

  • Mitchell, M. N. (2012). Interpreting and visualizing regression models using Stata. College Station, TX: Stata Press.

    Google Scholar 

  • Miyazaki, Y., & Raudenbush, S. W. (2000). Tests for linkage of multiple cohorts in an accelerated longitudinal design. Psychological Methods, 5, 44–63.

    Article  PubMed  Google Scholar 

  • Orr, R. R., Cameron, S. J., & Day, D. M. (1991). Coping with stress in families with children who have mental retardation: An evaluation of the double ABCX model. American Journal on Mental Retardation, 95, 444–450.

    PubMed  Google Scholar 

  • Pakenham, K. I. (2011). Benefit-finding and sense-making in chronic illness. In S. Folkman (Ed.), The Oxford handbook of stress, health, and coping (pp. 242–268). NY: Oxford University Press.

    Google Scholar 

  • Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome. Autism, 9, 191–212.

    Article  PubMed  Google Scholar 

  • Park, C. L. (2011). Meaning, coping, and health and well-being. In S. Folkman (Ed.), The Oxford handbook of stress, health, and coping (pp. 227–241). NY: Oxford University Press.

    Google Scholar 

  • Pearlin, L. I. (2000). The stress process revisited: Reflections on concepts and their interrelationships. In C. S. Aneshensel & J. C. Phelan (Eds.), Handbook of the sociology of mental health (pp. 395–415). NY: Plenum.

    Google Scholar 

  • Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22, 855–884.

    Article  PubMed  Google Scholar 

  • Pruchno, R., & Kleban, M. H. (1993). Caring for an institutionalized parent: The role of coping strategies. Psychology and Aging, 8, 18–25.

    Article  PubMed  Google Scholar 

  • Rabe-Hesketh, S., & Skrondal, A. (2008). Multilevel and longitudinal modeling using Stata. College Station, TX: Stata Press.

    Google Scholar 

  • Raudenbush, S. W., & Chan, W. S. (1993). Application of a hierarchical linear model to the study of adolescent deviance in an overlapping cohort design. Journal of Consulting and Clinical Psychology, 61, 941–951.

    Article  PubMed  Google Scholar 

  • Seltzer, M. M., Greenberg, J. S., Floyd, F. J., & Hong, J. (2004). Accommodative coping and well-being of midlife parents of children with mental health problems or developmental disabilities. American Journal of Orthopsychiatry, 74, 187–195.

    Article  PubMed  Google Scholar 

  • Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness and mental retardation. Psychology and Aging, 10, 64–75.

    Article  PubMed  Google Scholar 

  • Singer, J. D., & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and event occurrence. NY: Oxford University Press.

    Book  Google Scholar 

  • Skinner, E. A., Edge, K., Altman, J., & Sherwood, H. (2003). Searching for the structure of coping: A review and critique of category systems for classifying ways of coping. Psychological Bulletin, 2, 216–269.

    Article  Google Scholar 

  • Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876–889.

    Article  PubMed Central  PubMed  Google Scholar 

  • Snijders, T. A. D., & Bosker, R. J. (1994). Modeled variance in two-level models. Sociological Methods & Research, 22, 342–363.

    Article  Google Scholar 

  • Thoits, P. A. (1995). Stress, coping, and social support processes: Where are we? What next? Journal of Health and Social Behavior, 35, 53–79.

    Article  Google Scholar 

  • Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29, 16–26.

    Article  Google Scholar 

  • Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P., & Lunsky, Y. (2013). Family hardiness, social support, and self-efficacy in mothers of individuals with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 7, 1310–1317.

    Article  Google Scholar 

  • Whittingham, K. (2013). Parents of children with disabilities, mindfulness and acceptance: A review and a call for research. Mindfulness. Published online May 18, 2013. doi:10.1007/s12671-013-0224-8.

  • Willett, J. B., Singer, J. D., & Martin, N. C. (1998). The design and analysis of longitudinal studies of development and psychopathology in context: Statistical models and methodological recommendations. Development and Psychopathology, 10, 395–426.

    Article  PubMed  Google Scholar 

  • Woodman, A. C., & Hauser-Cram, P. (2012). The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57, 513–530.

    Article  PubMed  Google Scholar 

  • Yatchmenoff, D. K., Koren, P. E., Friesen, B. J., Gordon, L. J., & Kinney, R. F. (1998). Enrichment and stress in families caring for a child with a serious emotional disorder. Journal of Child and Family Studies, 7, 129–145.

    Article  Google Scholar 

  • Zhang, W., Yan, T. T., Du, Y. S., & Liu, X. H. (2013). Relationship between coping, rumination and posttraumatic growth in mothers of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 1204–1210.

    Article  Google Scholar 

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Acknowledgments

Special thanks are extended to the mothers who participated in this study and to Melissa Fernandes, Kristie Karlof, Dorothy Robison, Zach Rossetti, and Alexis St. James for their invaluable assistance in the collection of study data. The research on which this study is based was supported by the U.S. Department of Education, Grant No. H324C040092.

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Benson, P.R. Coping and Psychological Adjustment Among Mothers of Children with ASD: An Accelerated Longitudinal Study. J Autism Dev Disord 44, 1793–1807 (2014). https://doi.org/10.1007/s10803-014-2079-9

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