Family Resilience Relative to Children with Severe Disabilities

• Bailey, D. B., & Simeonsson, R. J. (1988). Family assessment in early intervention. Columbus, OH: Merrill.

  Google Scholar 

• Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Upper Saddle River, NJ: Prentice-Hall.

  Google Scholar 

• Beckman, P. J. (1991). Comparison of mothers’ and fathers’ perceptions of the effect of young children with and without disabilities. American Journal on Mental Retardation, 95, 585–595.

  Google Scholar 

• Blacher, J., Glidden, L. M., & Hastings, R. (2010). Families research—no longer monochromatic. Journal of Applied Research in Intellectual Disabilities, 23, 1–2.

  Article  Google Scholar 

• Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513.

  Article  Google Scholar 

• Broberg, M., Blacher, J., & Emerson, E. (2009). Editorial for JIDR special issue on resilience and people with intellectual disabilities. Journal of Intellectual Disability Research, 53, 955–956.

  Article  Google Scholar 

• Burden, R., & Thomas, D. (1986). A further perspective on parent reaction to handicap. The Exceptional Child, 33, 140–145.

  Article  Google Scholar 

• Capuzzi, C. (1989). Maternal attachment to handicapped infants and the relationship to social support. Research in Nursing & Health, 12, 161–167.

  Article  Google Scholar 

• Clayton, J. M., Glidden, L. M., & Kiphart, M. J. (1994). The questionnaires on resources and stress: What do they measure? American Journal on Mental Retardation, 99, 313–316.

  Google Scholar 

• Cuskelly, M. (1999). Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21, 111–124.

  Article  Google Scholar 

• DeLongis, A., & Holtzman, S. (2005). Coping in context: The role of stress, social support, and personality in coping. Journal of Personality, 73, 1633–1656.

  Article  Google Scholar 

• Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support. Personal, family, & child outcomes. American Journal of Mental Deficiency, 90, 403–417.

  Google Scholar 

• Eschleman, K. J., Bowling, N. A., & Alarcon, G. M. (2010). A meta-analytic examination of hardiness. International Journal of Stress Management, 17, 277–307.

  Article  Google Scholar 

• Friedrich, W. N., Greenberg, M. T., & Crnic, K. (1983). A short-form of the questionnaire on resources and stress. American Journal of Mental Deficiency, 88, 41–48.

  Google Scholar 

• Gerstein, E. D., Crnic, K. A., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 981–997.

  Article  Google Scholar 

• Giallo, R., & Gavidia-Payne, S. (2006). Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research, 50, 937–948.

  Article  Google Scholar 

• Glidden, L. M. (1993). What we do not know about families with children who have developmental disabilities: The questionnaire on resources and stress as a case study. American Journal of Mental Retardation, 97, 481–495.

  Google Scholar 

• Goldberg, L. R. (1992). The development of markers for the big-five factor structure. Psychological Assessment, 4, 26–42.

  Article  Google Scholar 

• Greenblatt, M., Becerra, R. M., & Serafetinides, E. A. (1982). Social networks and mental health: An overview. The American Journal of Psychiatry, 139, 977–984.

  Google Scholar 

• Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with Down syndrome and autism. Journal of Autism and Developmental Disorders, 40, 610–619.

  Article  Google Scholar 

• Hartshorne, T. S. (1991). The friendship life task and family-life satisfaction. Individual Psychology, 47, 477–481.

  Google Scholar 

• Hartshorne, T. S. (2002). Mistaking courage for denial: Family resilience after the birth of a child with severe disabilities. Journal of Individual Psychology, 58, 263–278.

  Google Scholar 

• Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127.

  Article  Google Scholar 

• Hill, R. (1958). Genetic features of families under stress. Social Casework, 49, 139–150.

  Google Scholar 

• Hill, C., & Rose, J. (2009). Parenting stress in mothers of adults with an intellectual disability: Parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 53, 969–980.

  Article  Google Scholar 

• Holroyd, J. (1974). The questionnaire on resources and stress: An instrument to measure family response to a handicapped family member. Journal of Community Psychology, 2, 92–94.

  Article  Google Scholar 

• Houser, R., & Seligman, M. (1991). A comparison of stress and coping by fathers of adolescents with mental retardation and fathers of adolescents without mental retardation. Research in Developmental Disabilities, 12, 251–260.

  Article  Google Scholar 

• Howell, S. E. (1973). Psychiatric aspects of habilitation. Pediatric Clinics of North America, 20, 203–219.

  Google Scholar 

• Kane, C. F. (1988). Family social support: Toward a conceptual model. Advances in Nursing Science, 10, 18–25.

  Google Scholar 

• Keller, D., & Honig, A. S. (2004). Maternal and paternal stress in families with school-aged children with disabilities. The American Journal of Orthopsychiatry, 74, 337–348.

  Article  Google Scholar 

• King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bates, A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32, 353–369.

  Article  Google Scholar 

• Larose, S., Bernier, A., Soucy, N., & Duchesne, S. (1999). Attachment style dimensions, network orientation and the process of seeking help from college teachers. Journal of Social and Personal Relationships, 16, 225–247.

  Article  Google Scholar 

• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

  Google Scholar 

• Lloyd, T. J., & Hastings, R. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968.

  Article  Google Scholar 

• Manaster, G. J., & Corsini, R. J. (1982). Individual psychology: Theory and practice. Chicago: Adler School of Professional Psychology.

  Google Scholar 

• McBride, B. A. (1989). Stress and fathers’ parental ­competence: Implications for family life and parent educators. Family Relations, 38, 385–389.

  Article  Google Scholar 

• Mitchell, R. G. (1973). Chronic handicap in childhood: It’s implications for family and community. The Practitioner, 211, 763–768.

  Google Scholar 

• Moes, D., Koegel, R. L., Schreibman, L., & Loos, L. M. (1992). Stress profiles for mothers and fathers of children with autism. Psychological Reports, 71, 1272–1274.

  Google Scholar 

• Mortenson, S. T. (2009). Interpersonal trust and social skill in seeking social support among Chinese and Americans. Communication Research, 36, 32–53.

  Article  Google Scholar 

• Murphy, M. A. (1982). The family with a handicapped child: A review of the literature. Developmental and Behavioral Pediatrics, 3, 73–82.

  Article  Google Scholar 

• Neece, C. L., Blacher, J., & Baker, B. L. (2010). Impact on siblings of children with intellectual disability: The role of child behavior problems. American Journal on Intellectual and Developmental Disabilities, 115, 291–306.

  Article  Google Scholar 

• Orr, R. R., Cameron, S. J., & Day, D. M. (1991). Coping with stress in families with children who have mental retardation: An evaluation of the double ABCX model. American Journal on Mental Retardation, 95, 444–450.

  Google Scholar 

• Park, C. L., & Folkman, S. (1997). Meaning in the context of stress and coping. Review of General Psychology, 1, 115–144.

  Article  Google Scholar 

• Reda, N. M., & Hartshorne, T. S. (2008). Attachment, bonding, and parental stress in CHARGE syndrome. Mental Health Aspects of Developmental Disabilities, 11, 10–21.

  Google Scholar 

• Rossiter, L., & Sharpe, D. (2001). The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies, 10, 65–84.

  Article  Google Scholar 

• Scorgie, K., Wilgosh, L., & McDonald, L. (1998). Stress and coping in families of children with disabilities: An examination of recent literature. Developmental Disabilities Bulletin, 26, 22–42.

  Google Scholar 

• Scorgie, K., Wilgosh, L., & Sobsey, D. (2004). The experience of transformation in parents of children with disabilities: Theoretical considerations. Developmental Disabilities Bulletin, 32, 84–110.

  Google Scholar 

• Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27, 699–710.

  Article  Google Scholar 

• Simons, L. G., & Conger, R. D. (2007). Linking mother-father differences in parenting to a typology of family parenting styles and adolescent outcomes. Journal of Family Issues, 28, 212–241.

  Article  Google Scholar 

• Snyder, C. R., Rand, K. L., & Sigmon, D. R. (2002). Hope theory: A member of the positive psychology family. In C. R. Snyder & S. J. Lopez (Eds.), Handbook of positive psychology (pp. 257–276). New York: Oxford University Press.

  Google Scholar 

• Taanila, A., Järvelin, M., & Kokkonen, J. (1998). Parental guidance and counselling by doctors and nursing staff: Parents’ views of initial information and advice for families with disabled children. Journal of Clinical Nursing, 7, 505–511.

  Article  Google Scholar 

• Taunt, H. M., & Hastings, R. P. (2002). Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities, 37, 410–420.

  Google Scholar 

• Tolsdorf, C. (1976). Social networks, support, and ­coping: An exploratory study. Family Process, 15, 407–417.

  Article  Google Scholar 

• Vaux, A. C., Burba, P. C., & Stewart, D. (1986). Orientation toward utilization of support resources. Journal of Community Psychology, 14, 159–170.

  Article  Google Scholar 

• Vermaes, I. P. R., Janssens, J. M. A. M., Mullaart, R. A., Vinck, A., & Gerris, J. R. M. (2008). Parents’ personality and parenting stress in families of children with spina bifida. Child: Care, Health and Development, 34, 665–674.

  Article  Google Scholar 

• Wallace, J. L., & Vaux, A. (1993). Social support network orientation: The role of adult attachment style. Journal of Social and Clinical Psychology, 12, 354–365.

  Article  Google Scholar 

• White, N., & Hastings, R. P. (2004). Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 17, 181–190.

  Article  Google Scholar 

• Woolfson, L., & Grant, E. (2006). Authoritative parenting and parental stress in parents of pre-school and older children with developmental disabilities. Child: Care, Health and Development, 32, 177–184.

  Article  Google Scholar 

• Yau, M. K., & Li-Tsang, C. W. P. (1999). Adjustment and adaptation in parents of children with developmental disabilities in two-parent families: A review of the characteristics and attributes. The British Journal of Developmental Disabilities, 45, 38–51.

  Article  Google Scholar 

• Ylven, R., Björck-Åkesson, E., & Granlund, M. (2006). Literature review of positive functioning in families with children with a disability. Journal of Policy and Practice in Individual Disabilities, 3, 253–270.

  Article  Google Scholar 

• Zeitlin, S., Williamson, G. G., & Rosenblatt, W. P. (1987). The coping with stress model: A counseling approach for families with a handicapped child. Journal of Counseling and Development, 65, 443–446.

  Article  Google Scholar 

Download references