Save Our Sons Duchenne Foundation
Non-profit Organizations
Hurlstone Park, New South Wales 620 followers
Our vision is to find a cure for Duchenne and Becker muscular dystrophy.
About us
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy. Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy. Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia. Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
- Website
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http://www.saveoursons.org.au
External link for Save Our Sons Duchenne Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Hurlstone Park, New South Wales
- Type
- Nonprofit
- Founded
- 2008
Locations
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Primary
3/570 New Canterbury Rd
Hurlstone Park, New South Wales 2193, AU
Employees at Save Our Sons Duchenne Foundation
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Sandy Kervin
CEO at Save Our Sons Duchenne Foundation
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Deborah Robins
Duchenne consumer/advocate, interested in Clinical Trials, HTA and Consumer Partnerships
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Nelson Dale
Podiatrist, Rugby player and Co-Founder of Draft Rugby (fantasy rugby platform)
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Elie Eid
Founder at Save Our Sons Inc