EB Research Partnership (Australia)

Thank you to FSC Marine & Civil Maintenance (MCM) and GWS GIANTS for your support of EB research! 🦋

We’re proud to welcome John Hutchins as our newest EBRP Australia ambassador. 👊🦋💥 John has lived with EB for over 19 years and is motivated to help raise awareness of EB and our mission. John is an absolute superhero and we’re lucky to have him join us. Last year John’s story attracted nationwide front page media coverage. Thank you, John! Read more here: https://lnkd.in/euU2SZRC

Still on a high from partnering with some of the Melbourne Victory Football Club to take the #PlungeForEB in Australia! 🥶♥️ This amazing community helped the Plunge for Elodie raise over $800K+ AUD globally. 💥🙏 There were so many great memories. Thank you to our friends at Football Victoria and The Pearl Jam Experience, and of course, thank you to Bruno Fornaroli, Alex Chidiac , Elise Kelond - Knight, Tori Hansen, Jess Nash, Paige Zois, Kayla Morrison, Jamilla Rankin, Rosie Curtis and Ava Briedis for taking the #PlungeforEB!!! Special shout out to Gary Bradshaw for the awesome photos and George’s Coffee for the fuel! ☕🤝🥳 Learn more and support us here: ebresearch.org.au 📸 Gary Bradshaw Photography

Lots of amazing memories from last weekend at the Gather Round in Adelaide! The GWS GIANTS stopped by the #PlungeforEB before battling it out to remain undefeated this season. 🦋💪🥶💥 You can still support the #PlungeforEB at https://lnkd.in/gRxFqnDs Plunge for EB photos by Jeff Wray Photography

Thank you to the brave Burmeister family, Dr. Connell, Good Friday Appeal, and Herald Sun for raising awareness of EB. 🦋❤️ Hope for a cure is on the horizon. Together we will #HealEB. https://lnkd.in/etUaf9RQ The Royal Children's Hospital Nathan Burmeister

EB Research Partnership (Australia) Melbourne plunge for EB is on this Sunday https://lnkd.in/gRxFqnDs thank you to all the incredible fundraisers and volunteers supporting the cause! #healEB 🦋🦋🦋

On 24 March in Melbourne and 6 April in Adelaide, join the EBRP family to take a plunge for EB, and pledge your support for our work towards developing a cure for Epidermolysis Bullosa (EB). https://lnkd.in/gRxFqnDs

Beyond honored to join the GWS GIANTS family!!! 🦋 💪 💥 “We are hoping that together we can help make a difference and play our part in helping find treatments, and hopefully a cure, for this debilitating disease.    Our players are proud they will run out onto a sold-out ENGIE Stadium on Saturday night to take on Collingwood in the inaugural Opening Round with EBRP on their shorts,” GIANTS CEO David Matthews said. Read more on our partnership here: https://lnkd.in/eCqcQ7jf EB Research Partnership (Australia) #RareDisease #AFL #charitypartner

The Plunge for Elodie is BACK and making bigger waves than ever before with 20+ locations worldwide! What started as a small hometown fundraiser has turned into a global movement not just for EB, but with ripple effects for #raredisease at large. With a fundraising goal of $500K in 2024, the plunge aims to surpass $2.5M raised to fund innovative and life-saving research!💥🧬 In honor of #RareDiseaseDay, we invite you to make a splash with us and take the plunge! 🦋🌊 💙Sponsor the plunge: opportunities vary widely and are a great way to boost your companies visibility while raising EB awareness! 💙Join a local plunge: Whether you’re plunging at one of our in-person locations or virtually, please join a team online and start fundraising. We can’t wait to plunge with you! 💙Donate: give today to help us meet our fundraising goal of $500K. Every dollar makes a difference! Read full press release here: https://lnkd.in/ea-739y5

Thank you to the Marine & Civil Maintenance (MCM) and FSC teams for your support to help fund life changing research to find a cure for EB! Together we will #healEB 🦋 🦋 🦋