Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Oct;13(4):100969.
doi: 10.1016/j.dhjo.2020.100969. Epub 2020 Jun 24.

COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State

Scott D Landes  1 , Margaret A Turk  2 , Margaret K Formica  3 , Katherine E McDonald  4 , J Dalton Stevens  5
Affiliations

COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State

Scott D Landes et al. Disabil Health J. 2020 Oct.

Abstract

Background: People with intellectual and developmental disabilities (IDD) may be at higher risk of severe outcomes from COVID-19.

Objective: To describe COVID-19 outcomes among people with IDD living in residential groups homes in the state of New York and the general population of New York State.

Methods: Data for people with IDD are from a coalition of organizations providing over half of the residential services for the state of New York, and from the New York State Department of Health. Analysis describes COVID-19 case rates, case-fatality, and mortality among people with IDD living in residential group homes and New York State through May 28, 2020.

Results: People with IDD living in residential group homes were at greater risk of severe COVID-19 outcomes: case rates - 7,841 per 100,000 for people with IDD compared to 1,910 for New York State; case-fatality - 15.0% for people with IDD compared to 7.9% for New York State; and mortality rate - 1,175 per 100,000 for people with IDD compared to 151 per 100,000 for New York State. Differences in cases and mortality rate were confirmed across regions of the state, but case-fatality rate was only higher for people with IDD in and around the New York City region.

Conclusions: COVID-19 appears to present a greater risk to people with IDD, especially those living in congregate settings. A full understanding of the severity of this risk will not be possible until US states begin publicly sharing all relevant data they have on COVID-19 outcomes among this population.

Keywords: COVID-19; Case-fatality; Cases; Developmental disability; Intellectual disability; Mortality; Residential group homes.

PubMed Disclaimer

Conflict of interest statement

Declaration of competing interest To the best of our knowledge, no conflict of interest, financial or other, exists.

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

References

    1. Fujiura G.T., Taylor S.J. Continuum of intellectual disability: demographic evidence for the “forgotten generation”. Ment Retard. 2003;41(6):420–429. - PubMed
    1. Larson S.A., Lakin K.C., Anderson L., Kwak Lee N., Lee J.H., Anderson D. Prevalence of mental retardation and developmental disabilities: estimates from the 1994/1995 national health interview survey disability supplements. Am J Ment Retard. 2001;106(3):231–252. - PubMed
    1. CDC Developmental disabilities. centers for disease control and prevention. https://www.cdc.gov/ncbddd/developmentaldisabilities/index.html Published 2019. Accessed.
    1. Boyle C.A., Boulet S., Schieve L.A. Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics. 2011;127(6):1034–1042. - PubMed
    1. Prasher V.P., Janicki M.P., editors. Physical Health of Adults with Intellectual and Developmental Disabilities. second ed. Springer; New York: 2019.