Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2010 Mar;6(1):7-21.
doi: 10.1177/1742395309352254.

Emerging models for mobilizing family support for chronic disease management: a structured review

Ann-Marie Rosland  1 , John D Piette
Affiliations
Review

Emerging models for mobilizing family support for chronic disease management: a structured review

Ann-Marie Rosland et al. Chronic Illn. 2010 Mar.

Abstract

Objectives: We identify recent models for programmes aiming to increase effective family support for chronic illness management and self-care among adult patients without significant physical or cognitive disabilities. We then summarize evidence regarding the efficacy for each model identified.

Methods: Structured review of studies published in medical and psychology databases from 1990 to the present, reference review, general Web searches and conversations with family intervention experts. Review was limited to studies on conditions that require ongoing self-management, such as diabetes, chronic heart disease and rheumatologic disease.

Results: Programmes with three separate foci were identified: (1) Programmes that guide family members in setting goals for supporting patient self-care behaviours have led to improved implementation of family support roles, but have mixed success improving patient outcomes. (2) Programmes that train family in supportive communication techniques, such as prompting patient coping techniques or use of autonomy supportive statements, have successfully improved patient symptom management and health behaviours. (3) Programmes that give families tools and infrastructure to assist in monitoring clinical symptoms and medications are being conducted, with no evidence to date on their impact on patient outcomes.

Discussion: The next generation of programmes to improve family support for chronic disease management incorporate a variety of strategies. Future research can define optimal clinical situations for family support programmes, the most effective combinations of support strategies, and how best to integrate family support programmes into comprehensive models of chronic disease care.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Possible Family Roles in Care of Functionally Independent Adults with Chronic Illness, and Theoretical Mechanisms of Effect on Chronic Illness Outcomes
See this image and copyright information in PMC

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

References

    1. Norris SL, Nichols PJ, Caspersen CJ, et al. The effectiveness of disease and case management for people with diabetes. A systematic review. American Journal of Preventive Medicine. 2002;22(4 Suppl):15–38. - PubMed
    1. Phillips CO, Wright SM, Kern DE, Singa RM, Shepperd S, Rubin HR. Comprehensive discharge planning with postdischarge support for older patients with congestive heart failure: a meta-analysis. JAMA. 2004;291(11):1358–1367. - PubMed
    1. Bott DM, Kapp MC, Johnson LB, Magno LM. Disease management for chronically ill beneficiaries in traditional Medicare. Health Affairs. 2009;28(1):86–98. - PubMed
    1. Bodenheimer T, Chen E, Bennett HD. Confronting the growing burden of chronic disease: can the U.S. health care workforce do the job? Health Affairs. 2009;28(1):64–74. - PubMed
    1. Rosland A-M. Sharing the Care:The Role of Family in Chronic Illness. [Accessed on 08-16-2009]; http://www.chcf.org/documents/chronicdisease/FamilyInvolvement_Final.pdf.

Publication types