Peer support for carers: a qualitative investigation of the experiences of carers and peer volunteers
- PMID: 23813790
- PMCID: PMC10852788
- DOI: 10.1177/1533317513494449
Peer support for carers: a qualitative investigation of the experiences of carers and peer volunteers
Abstract
Being a carer of someone with dementia can be rewarding and also challenging. Volunteer peer support schemes for carers are being introduced, little is known about either their impact on carers and volunteers or about volunteers' and carers' experiences. This study investigated peer volunteer and carer recipient experiences of a peer support service. Thematic analysis of 13 in-depth interviews with 9 carers and 4 peer volunteers revealed that peer support helped both carers and peer volunteers through the realization that they were "not alone" in their experiences and emotions. Additional carer benefits included opportunities to talk freely about difficult experiences and learning how others cope. Volunteers found their role rewarding, describing satisfaction from putting their own experiences to good use. These findings highlight the isolation and exclusion experienced by current and former carers of people with dementia and draw attention to the benefits of peer support for both the groups.
Keywords: caregiver; carer; dementia; peer support; qualitative; volunteers.
Conflict of interest statement
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Similar articles
-
Volunteer peer support and befriending for carers of people living with dementia: An exploration of volunteers' experiences.Health Soc Care Community. 2018 Mar;26(2):158-166. doi: 10.1111/hsc.12477. Epub 2017 Jul 24. Health Soc Care Community. 2018. PMID: 28736867
-
The impact of volunteering on the volunteer: findings from a peer support programme for family carers of people with dementia.Health Soc Care Community. 2017 Mar;25(2):548-558. doi: 10.1111/hsc.12341. Epub 2016 Mar 10. Health Soc Care Community. 2017. PMID: 26970311
-
The impact of befriending and peer support on family carers of people living with dementia: A mixed methods study.Arch Gerontol Geriatr. 2018 May-Jun;76:188-195. doi: 10.1016/j.archger.2018.03.005. Epub 2018 Mar 7. Arch Gerontol Geriatr. 2018. PMID: 29547740
-
The impact of volunteer mentoring schemes on carers of people with dementia and volunteer mentors: a systematic review.Am J Alzheimers Dis Other Demen. 2014 Feb;29(1):8-17. doi: 10.1177/1533317513505135. Epub 2013 Oct 1. Am J Alzheimers Dis Other Demen. 2014. PMID: 24085253 Free PMC article. Review.
-
Efficacy and experiences of telephone counselling for informal carers of people with dementia.Cochrane Database Syst Rev. 2014 Sep 1;2014(9):CD009126. doi: 10.1002/14651858.CD009126.pub2. Cochrane Database Syst Rev. 2014. PMID: 25177838 Free PMC article. Review.
Cited by
-
Understanding caregiver burden and quality of life in Kerala's primary palliative care program: a mixed methods study from caregivers and providers' perspectives.Int J Equity Health. 2024 May 7;23(1):92. doi: 10.1186/s12939-024-02155-x. Int J Equity Health. 2024. PMID: 38715047 Free PMC article.
-
Culturally Adapting the World Health Organization Digital Intervention for Family Caregivers of People With Dementia (iSupport): Community-Based Participatory Approach.JMIR Form Res. 2024 Jan 24;8:e46941. doi: 10.2196/46941. JMIR Form Res. 2024. PMID: 38265857 Free PMC article.
-
Enhancing Minds in Motion® as a virtual program delivery model for people living with dementia and their care partners.PLoS One. 2024 Jan 19;19(1):e0291166. doi: 10.1371/journal.pone.0291166. eCollection 2024. PLoS One. 2024. PMID: 38241269 Free PMC article.
-
Video Conferencing Peer Support and Rarer Forms of Dementia: An Exploration of Family Carers' Positive Experiences.Qual Health Res. 2023 Aug;33(10):884-896. doi: 10.1177/10497323231172880. Epub 2023 Jul 3. Qual Health Res. 2023. PMID: 37395095 Free PMC article.
-
Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study.Health Expect. 2023 Aug;26(4):1628-1635. doi: 10.1111/hex.13767. Epub 2023 Apr 21. Health Expect. 2023. PMID: 37086030 Free PMC article.
References
-
- National Audit Office. Improving Services and Support for People with Dementia. London, England: The Stationery Office (TSO); 2007.
-
- Alzheimer’s Association. 2012 Alzheimer’s disease facts and figures. Alzheimers Dement. 2012;8(2):131–168. - PubMed
-
- Department of Health. Living Well With Dementia: A National Dementia Strategy. London, England: Department of Health; 2009.
-
- Australian Health Ministers’ Conference. National Framework for Action on Dementia. North Sydney, New South Wales: Department of Health; 2006.
-
- Scottish Government. Scotland’s National Dementia Strategy. Edinburgh, Scotland: The Scottish Government; 2010.
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical