What are the autism research priorities of autistic adults in Scotland?

E Cage, CJ Crompton, S Dantas, K Strachan…�- …, 2024 - journals.sagepub.com
Studies investigating autistic community research priorities indicate a mismatch between
what autism research focuses on and what autistic people want to see researched�…

What should autism research focus upon? Community views and priorities from the United Kingdom

E Pellicano, A Dinsmore, T Charman�- Autism, 2014 - journals.sagepub.com
The rise in the measured prevalence of autism has been accompanied by much new
research and research investment internationally. This study sought to establish whether the�…

A future made together: Shaping autism research in the UK

L Pellicano, A Dinsmore, T Charman - 2013 - researchers.mq.edu.au
Autism research has taken great strides toward understanding autism, its causes and its
consequences. This research has the potential to transform the everyday lives of those with�…

Autistic co-led community priorities for future autism research in Aotearoa New Zealand

LM Emerson, R Monk, L van der Meer…�- Autism in�…, 2024 - liebertpub.com
Background: Previous studies of community priorities for autism research have been limited
by low representation of autistic people and thus a bias toward the views of families and�…

'We have so much to offer': Community members' perspectives on autism research

T Haar, C Brownlow, G Hall, M Heyworth…�- …, 2024 - journals.sagepub.com
Autism research is on the cusp of significant change. There are mounting calls from Autistic
self-advocates, researchers, and other scientists for a paradigm shift in autism research. Yet�…

[HTML][HTML] Guidelines for conducting research studies with the autism community

E Gowen, R Taylor, T Bleazard, A Greenstein…�- Autism policy &�…, 2019 - ncbi.nlm.nih.gov
There has been growing awareness of the concern expressed by autism communities that
the majority of research conducted does not reflect the priorities or needs of autistic people�…

[HTML][HTML] Views on researcher-community engagement in autism research in the United Kingdom: A mixed-methods study

E Pellicano, A Dinsmore, T Charman�- PLoS One, 2014 - journals.plos.org
There has been a substantial increase in research activity on autism during the past decade.
Research into effective ways of responding to the immediate needs of autistic people is�…

[PDF][PDF] Who benefits from autism research? And to what extent is it participatory and/or emancipatory?: A brief follow-up to Pellicano, Dinsmore and Charman (2014)

N Chown�- Autism Policy and Practice, 2019 - academia.edu
Several years ago, the A Future Made Together report on autism research in the UK
(Pellicano, Dinsmore and Charman, 2013), including a survey of the autism community in�…

Meaningful research for autistic people? Ask autistics!

R Poulsen, C Brownlow, W Lawson, E Pellicano�- Autism, 2022 - journals.sagepub.com
4 Autism 26 (1) professionals–rather than autistic people themselves–while creating
opportunities to increase awareness and understanding about the autistic community�…

'Something needs to change': Mental health experiences of young autistic adults in England

L Crane, F Adams, G Harper, J Welch, E Pellicano�- Autism, 2019 - journals.sagepub.com
There is a high incidence and prevalence of mental health problems among young people,
with several barriers to help-seeking noted in this group. High rates of mental health�…