Which terms should be used to describe autism? Perspectives from the UK autism community

L Kenny, C Hattersley, B Molins, C Buckley…�- …, 2016 - journals.sagepub.com
Recent public discussions suggest that there is much disagreement about the way autism is
and should be described. This study sought to elicit the views and preferences of UK autism�…

Exploring the experience of seeking an autism diagnosis as an adult

M de Broize, K Evans, AJO Whitehouse, J Wray…�- Autism in�…, 2022 - liebertpub.com
Background: Emerging research suggests that seeking an autism diagnosis as an adult is
usually difficult and time-consuming but brings relief once a diagnosis is made. This study�…

[HTML][HTML] Autism in Australia: Community knowledge and autistic people's experiences

SC Jones, M Akram, CS Gordon, N Murphy…�- Journal of Autism and�…, 2021 - Springer
This paper presents two studies that explored community attitudes to autism in Australia; and
autistic people and their families' perspectives of community attitudes. In Study One 2424�…

[HTML][HTML] Linking knowledge and attitudes: Determining neurotypical knowledge about and attitudes towards autism

R Kuzminski, J Netto, J Wilson, T Falkmer…�- PloS one, 2019 - journals.plos.org
“Why are neurotypicals so pig-ignorant about autism?” an autistic person wrote on the Curtin
Autism Research Group's on-line portal as a response to a call for research questions. Co�…

[HTML][HTML] Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals

L Crane, R Batty, H Adeyinka, L Goddard…�- Journal of autism and�…, 2018 - Springer
Accessing an autism diagnosis is a key milestone, both for an individual and their family.
Using a qualitative methodology, the current study examined the views and experiences of�…

“It defines who I am” or “It's something I have”: What language do [autistic] Australian adults [on the autism spectrum] prefer?

SM Bury, R Jellett, JR Spoor, D Hedley�- Journal of autism and�…, 2023 - Springer
There has been a recent shift from person-first to identity-first language to describe autism. In
this study, Australian adults who reported having a diagnosis of autism (N= 198) rated and�…

Awareness and knowledge of autism and autism interventions: A general population survey

K Dillenburger, JA Jordan, L McKerr, P Devine…�- Research in autism�…, 2013 - Elsevier
Recent figures show that autism spectrum disorder (ASD) affects at least 1 in 88 of the
population, yet for years, international public awareness of ASD was limited. Over the past 5�…

A future made together: Shaping autism research in the UK

L Pellicano, A Dinsmore, T Charman - 2013 - researchers.mq.edu.au
Autism research has taken great strides toward understanding autism, its causes and its
consequences. This research has the potential to transform the everyday lives of those with�…

Attitudes of the autism community to early autism research

S Fletcher-Watson, F Apicella, B Auyeung…�- …, 2017 - journals.sagepub.com
Investigation into the earliest signs of autism in infants has become a significant sub-field of
autism research. This work invokes specific ethical concerns such as use of 'at�…

What should autism research focus upon? Community views and priorities from the United Kingdom

E Pellicano, A Dinsmore, T Charman�- Autism, 2014 - journals.sagepub.com
The rise in the measured prevalence of autism has been accompanied by much new
research and research investment internationally. This study sought to establish whether the�…